We had our first follow up visit with the GI this week since leaving the hospital. The great news is that ALL of Connor’s test results have come back normal. This poor child has had to endure an upper GI, endoscopy and colonoscopy, swallow study, biopsies, blood work, urine and fecal studies. There is almost no portion of this kid that hasn’t been poked, prodded and analyzed. Like a champ he’s endured it all with a smile on his face and a squeal for the doctors. He’s my little hero!
The GI (completely perplexed) actually told us that he has no idea how Connor has as much energy as he does based on the amount of calories he takes in. This kid just doesn’t eat! For all practical purposes he should be limp and lethargic, but instead he’s a playing, wiggling and cooing machine. So now instead of admitting defeat the doctor’s newest theory is that Connor has a weak “sucker” and will only eat enough to satisfy his hunger, but not enough to gain weight.
The second theory (and this comes more from my mother-in-law the nurse/baby extraordinaire) is that Connor suffers from a constant state of ear infections that make it painful for him to suck on a bottle. It’s entirely possible since at only 5 months of age, he’s already been diagnosed with two ear infections and is currently finishing his second dose of amoxicillin. We have an appointment at the ENT today to explore this possibility further.
In the mean time, Ross’s mom is staying with us and is fully focused on getting her grandson to eat…and let me tell you, she’s not taking NO for an answer! After working with him all day yesterday she was able to get 28 ounces of formula in him. That’s his highest intake ever!! Way to go Beth and Connor!!
Against our doctor’s request, we’ve also started introducing foods. Here are a few pictures of Connor as he tries to master the art of fine cuisine.
2 comments:
That is FANTASTIC news, although I am so sad for little Connor and for you guys to have been put through all of this! 28 oz rocks and I think the food will help add some fat too! You guys are doing great and it ALWAYS helps having someone with experience and knowledge to help you figure things out and help diagnose even when the doctor's can't seem to! Such great news and happy news! Love to all of you!
I swear, kids are so resilent and so sweet! Even when they don't feel good they just look at your face and give you the sweetest smile. I love that about them!! I am totally down w/ taken him to the ENT! Avery had back-to-back ear infections from 3 months until we finally did tubes at 10 months. Those things are painful for them and could actually be some of his problems. Keep us posted!!
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